Clotting proteins missing or are defective in hemophilia can directly affect the activity of cells responsible for bone ...
Columnist Jennifer Lynne attends the recent One Drop conference, which focused on ultrarare bleeding disorders.
Today, when girls and women struggle to obtain a hemophilia diagnosis and proper treatment, I am angry. We need to do better.
Hank Wolgamott, who has hemophilia A, and his mother, Amanda, live in Texas. They share dramatic questions they've gotten ...
Columnist Joe MacDonald recalls having bronchitis yet having no other choice than to continue his son's factor infusion.
FVIII replacement prophylaxis was more cost-effective than on-demand treatment for hemophilia A children and teens in China, ...
MacDonald feels anxious while preparing for spinal surgery, but recalls her sons' bravery in the face of hemophilia.
Columnist Alliah Czarielle and her husband, each with challenging conditions, are aware of the benefits of pride and dignity.
Jennifer Lynne, who has hemophilia B, shares a ridiculous comment she gets when people find out she can start her own IVs.
Jared Formalejo, who has hemophilia B, and his wife, Alliah, share about a time they used an unorthodox yet effective solution for a bleed.